06.29.12 Wellness

There, I Said It: I Have Pre-Cancer

There, I Said It: I Have Pre-Cancer

BY Laura B

I think every woman has her time of crisis – a love lost, a hiccup in her health, a lack of work, a work overload, the nagging question of “to be or not to be” when it comes to children. In living the life she lives, a woman can get stuck in hard times.

Sometimes the only way through the issue is to discuss it with our fellow human-kind in an attempt to normalise things and gain a bit of support. However, human-kind sometimes isn’t so willing to hear. Social rules dictate we avoid certain topics. Therefore we embark on trying to forget or ignore the issue with friends and family and the greater public in order to make other people’s lives easier and to satisfy those invisible social rules. Now I’m not talking airing your dirty laundry in public, I’m talking health – mental and physical. I’m talking real people’s lives, not gossip.

For me my time of crisis was very recently, my health took a turn for the worse. However, I didn’t get stuck; I watched and got involved and moved forward. I TALKED about it openly.

I attended my regular smear tests; I hated the uncomfortable feeling of having the walls of my vagina opened by a metal instrument. But, ever the ‘good girl’ doing what the doctor said, I did it; I made the small talk with her while she performed this invasive procedure, we chatted about the weather and work and then I went on my merry way. A while later I was asked to come in for a second test as my results were “abnormal”. I had no fear, assuming it was common. So I popped along for a second test.

Then, I had a letter saying the second test came back “abnormal”. The hospital was arranging an appointment for a colposcopy. A WHAT?! I Googled (as we do) and the word CANCER appeared oh so many times. Fear seeped in slowly. C.A.N.C.E.R. Cancer of my lady bits?!

Freaking out in the nurses office, wearing my best ‘I’m calm’ face (which is rubbish – my face, like Shakira’s hips, just don’t lie), I was told I had at least CIN1, possibly CIN2. Again, I had to Google it – CIN is basically pre-cancer, the higher the number, the more developed the calls are. The nurses at the hospital talked about “the process” of cancer and “the journey” of the cells. I was given the option of watching my colposcopy, which I did, eyes wide open.

I made the choice that it’s my cervix inside my body and I want to see the process. I watched as she swapped me clean and then sprayed different coloured liquids on me. It was amazing. I saw the nasty little cells, all bright white while the rest of my insides were a nice tan (the only part of me that’s ever had fake tan). They looked harmless, but there were a lot of them. I coughed as the nurse took the biopsies (giggling lots); she took a few and then smiled as I thanked her. She cauterized the area (burnt the cervix to stop the bleeding) and off I hopped. The pain afterwards wasn’t nice, pretty bad period pain for a week or so, but not too bad. I had survived!

I received another letter. My results were in. My results were CIN3.

Having been formally diagnosed with pre-cancerous cells in my cervix, I went into a little panic. My mother went into panic. Not only having some rather nasty cells, they were “down there” and “women’s problems” and they were “pre-CANCEROUS”. Having always been a drama queen with nothing particularly dramatic happen in my life this was EPIC–PANIC times.

However, I did not retreat. I could not try to forget or ignore this. I discussed it. Being someone who talks a lot about everything unimportant, I discussed this important life event. I discussed it with family and friends. I talked about it with men, with women, with anyone who asked how I was (that hilarious moment – innocently asked by a distant friend “How are you?” “Good, thanks, although I have pre-cancerous cells in my cervix. How are YOU?” Insert awkward silence). I mentioned it on Facebook and on Twitter. I was so vocal about my pre-cancer that I embarrassed a few people. My father even asked if “this is the right place and time to discuss this” at a BBQ. My answer? Yes, it damn is!

When we have a crisis or trauma, WE NEED TO DISCUSS IT! With everyone! Only by discussing it did I find out that some of my friends had been through it, and many friends of friends had had CIN1, 2 or 3. Why did I not know? Why are we embarrassed or ashamed to discuss “women’s issues” or the dreaded cancer?

The moment we attach shame or embarrassment to something, it sticks. Others feel the same; nobody talks about it. I am a woman, I have a vagina and a cervix and my cervix has developed cells that, if left untreated, would become cancerous and very harmful to my body. I am not ashamed. I have cried about this, and I have laughed about this. I am unstuck in this crisis because I talk about this. And I am entitled to talk about this because it’s my body and my life. And you want to know a massive secret? People LOVE to help. People want to be there for you. People on the whole are bloody lovely. And it’s nice to have lovely things said and hugs and support.

And so, in just over a week’s time, the cells are being removed, and in a few weeks more I will be healthy again. My body will be free from bad cells and I will be safe in the knowledge that talking about my illness not only made me feel better, it normalised the whole thing and even made me closer to a few people.

Ladies – have your smears, talk about them. And talk about the results.

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Laura B works for a mental health charity running a well-being centre and self-help support groups in Swansea. In her spare time she enjoys knitting, sewing, writing, blogging, reading and all things crafty and creative, as well as spending time with my beautiful family and friends and having adventures. You can find her on twitter @laurasbubble chatting about feminism, mental health issues and all things her and you can read her blog  honestlittleme.blog.co.uk  to keep up to date with heradventures and shenanigans!

Comments

  • Busera2003

    Glad to hear you are okay and will be okay, great article :)  

    • http://twitter.com/laurasbubble Laura Lou

      Thank you! X

  • Tannis Dyrland

    I understand what  you went through and happy you are o.k. At 21 I had abnormal cells too. I was scared of the unknown. I had a biopsy done and was later told I needed Laser Surgey to remove them.  After 2-3 more pap smears  I was cleared.  It is so important for women to have their regular pap tests done.  It maybe uncomfortable with that speculum between your legs and someone down there taking swabs, but it’s a life saver.

    • http://twitter.com/laurasbubble Laura Lou

      Thank you for your comment… It IS a lifesaver! X

  • Debbiewatson

    Fantastic article Laura, I am one of those women who does have cervical cancer, stage 3. It is important to discuss this and shouldn’t we be having smears yearly? I was due for mine but the disease got the better of that time frame and rapidly grew!
    I’ve completed a gruelling course of radiotherapy and chemotherapy, broke down but never given up.
    My cancer hasn’t completely gone so on goes my treatment, which is a hysterectomy.
    I am 34 years old, and already have been forced to go through the menopause, grr for hot sweats!
    I am positive and dertermined to beat this disease.
    Let’s all be aware this is real, the 2nd most common cancer in Europe for women under 35 years!
    Have your smears!

    • http://twitter.com/laurasbubble Laura Lou

      Thanks Debbie, you’re a total star! 

  • http://www.facebook.com/patrice.lewis.562 Patrice Lewis

    I had stage IV cervical dysphasia (that’s what they called is 20 yrs ago) when I was 25 years old. My Doctor called me and told me that I would have to see a specialist and have a colposcopy. The colposcopy showed abnormal cells and the report said “possible carcinoma in situ”. I remember being so young and naive, not really knowing what to do, blindly following the advice of these drs. I was being sent to, but thank God I did. About 20 years ago the most common treatment for cervical dysphasia was freezing the cells. I was sent to a specialist who was dong a new procedure to remove these cells. I was very lucky.

    During this time, things got crazy when I became pregnant. My husband and I were desperately trying to have a child and prior to this diagnosis, we had just begun fertility treatments in order to assist us in reaching our goal. Now I was left with a dilemma. What do I do about the precancerous/possible carcinoma in situ cells that I had in my cervix? The specialist asked me if I wanted to keep the baby and of course my answer was yes. He then said, “OK, call me when this is resolved”. I’ll never forget those words because I found that to,be a rather strange and curious response. Little did I know that the craziness was just beginning.

    My Ob/Gyn called me not long after the discussion with the specialist to inform me that there was a problem with the blood tests that had been performed at the lab. Evidently, she suspected an ectopic pregnancy. I spent the next two,weeks having blood tests done just about every two days with the counts increasing and decreasing at will. I eventually miscarried.

    I was then sent back to the specialist and told that he would like to remove the pre-cancerous/cancerous cells with a laser. I agreed and the procedure was performed. I was very lucky. Not only did I have pre-cancerous cervical cells but the cells were in the endo cervix leading into the uterus. If I had carried the baby to full term it is very possible that the pre-cancerous cells would have become cancerous and that would have been the only child I would have born. I most likely would have had to have a hysterectomy at the age of 27. I now have 3 beautiful children and all of my pap smears have been normal since my surgery those many hers ago. I tell everyone my story so that they will have their annual pap smears.

  • countrytink09

    I was in this same place in my life a few months ago, however my doctor used the word that we really also hate to hear, HPV (human papillomavirus). She said that basically anytime you have pre-cancer that it is HPV. Also she then told me statistics, which I later used when explaining to someone what I was dealing with to try and make it sound better. These statistics that I was told are these: 90% of women in the United States have HPV, and 70% of the general population has it, if you have had sex with more than one person (and they weren’t virgins), then you probably have HPV. This to me, is scary. At 22 I have an STD?!?!?! Something I never saw in my future. But HPV is NOT talked about near as much as it should be! Men are carriers, and most of the time have NO symptoms. I chose to have a leep procedure done which uses electricity to cut out the pre-cancerous cells and boy was I scared. I could have chosen, according to my doctor, to wait six months because with my age, it PROBABLY wouldn’t turn into anything. I did not want to take that risk. I am jealous of your courage to stand out and talk about it, because I feel like I am a monster if I tell someone. In our society, no one wants to be a monster.

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